Faces of Lyme: Alexandra's Story
I was bitten by a tick at the beginning of November of 2012. I began to develop flu like symptoms a few weeks later, with my symptoms increasing in severity almost on a daily basis after that. I was diagnosed with Lyme disease in December and was treated with a 21-day course of antibiotics.
However, due to my symptoms, we believe that I had actually had Lyme for quite some time before my diagnosis. That is most likely why the Lyme is affecting my central nervous system so quickly. It also meant that the basic treatment I received would not be enough for me.
After I completed the antibiotics, I began to feel somewhat better for a couple of weeks. Unfortunately, my Lyme symptoms came back with full vengeance and even worse in severity the second week of January. The flu-like symptoms of general malaise, mild body aches, headache, stomach pain, and nausea are nothing in comparison to how Lyme Disease is already affecting my central nervous system.
To name a few of the central nervous system symptoms that I am suffering from:
- severe migraine headaches
- shock-like vibrations in my head and upper body
- dizziness and loss of balance
- facial tremors
- stuttering speech
- numbness and tingling of my hands and feet
- and the list goes on...
I've gone from being a fairly healthy 19-year-old young woman who was planning on graduating from college this coming May, to a young woman who can barely get out of bed most days. I am unable to work and unable to attend college this semester at Cayuga Community College. Basic activities of daily living have become a struggle for me.
Lyme disease can be extremely difficult to treat. There are currently no physicians in the Central New York area that specialize in the treatment of Chronic Lyme Disease. Unfortunately, traveling a great distance is necessary to get the treatment from a Lyme-Literate Medical Doctor. I am hopeful that from the help of a knowledgable physician, I will be back to feeling better in no time! I realize it will be a long road, but I am so ready to kick Lyme right in the butt!
--Written by Alexandra
Edited by Ginger
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Faces of Lyme: Alexandra's Mom Christen
Hello, my name is Christen Lothridge.
My 19-year-old daughter, Alexandra, is seriously ill due to Chronic Lyme Disease and possibly other tick-borne diseases. Some of you well know that Lyme disease is a complex illness that is difficult to understand and treat. If not treated correctly and effectively, Lyme disease will likely have an impact on a person for their entire life.
Alexandra was bitten by a tick in early November of 2012. She became extremely ill with flu-like symptoms shortly after. She became so ill that I took her to the emergency room, where she was diagnosed with Lyme disease. She was treated with a 21-day course of antibiotics. For about two weeks, we thought she was getting better, but that quickly changed when all of her symptoms came back shortly after with full vengeance.
We now believe that Alexandra has had Lyme for quite some time, (3+ years) due to unexplained symptoms, and that is why the tick bite in early November has affected her central nervous system so quickly.
Unfortunately, the cost of Alexandra's medical care is more than I can cover due to other financial hardships that I've experienced in the last few years. I have no other resources than to reach out and ask for help from others. Alexandra's central nervous system is now being affected from the Lyme disease, along with many other parts of her body. Alexandra is experiencing a frightening set of symptoms.
She is unable to work, drive a car, and has had to take the semester off from college. At the age of 19, all activities of daily living are a struggle for Alexandra. I just can't stand to see my daughter suffer. Alexandra was a young, fairly healthly woman who always had a smile on her face. She was due to graduate from college this May at the the age of 19. I've watched her change from this, into a girl who now struggles get out of bed everyday.
It kills me so deep inside as a parent.
Alexandra's initial visit with the LLMD (Lyme-Literate Medical Doctor) will be $650. Her follow up visits will be $175 each. This DOES NOT include any testing, medications, or any other treatments specific to the Lyme disease or co-infections. We do not know at this time how long she will have to receive treatment for. There is also a substantial amount of travel involved, as a visit to the LLMD she will be seeing is 760 miles round-trip.
Again, please let me stress that, without the help of others, I do not have the resources available to me that will make it possible for Alexandra to seek treatment. There are no LLMD's in our area of the state, and that is why we have to seek medical treatment so far away from home. The doctor that we have chosen is a brilliant man and has been reccomened to Alexandra by many people within the Lyme community. Everyone speaks very highly of him; they have nothing but great things to say about him!
Your contributions will help make it possible for Alexandra to seek proper treatment for her Lyme Disease and other possible co-infections so that she can get well, and hopefully lead a healthy life.
--Written by Christen
Edited by Ginger
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Would you like to contribute to Alexandra and help her pay for treatment?
You can also follow updates on Alexandra's case or make donations on her personal fundraising page.
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